So there's a talk I've been dreading for almost nine years.
The talk that I would chew my right leg off to get out of.
Turns out I may never have to have THE talk.
And it's so not what you think.
For nine years I've been terrified for Grace to ask me if CF will kill her. Statistically, it will.
Let that sink in for minute.
Yeah, the very idea of that talk still makes me throw up in my mouth a little. I'm not sure how to explain to my happy, vibrant second grader that CF could slowly suffocate her to death. To tell her that she can expect a lifetime full of treatments and hospital stays to only buy time before the inevitable.
Yep, makes me nauseous every time I think about it.
I've spent the last couple of years trying to decide whether to tell her and ruin her innocence or risk a kid at school googling CF only to tell her.
But this week it hit me. I was doing the dishes and playing on a cf facebook group. They were talking about how close we are for the meds that will temporarily fix Grace's type of gene defect. I mean like she could be on it sometime in 2014.
Yeah we're that close. As in I may NEVER have to have that talk with Grace.
As in when she asks me if Cystic Fibrosis will kill her I can say NO. Not we're looking for a cure. Not we're getting so close. But I can say NO.
And I broke down, tears streaming down my cheeks at the kitchen sink.
You guys, seriously I just can't even put this into words!
And I have to tell you guys thank you. Oh my gosh, thank you doesn't even begin to cover it.
This year and every other year since she was born you have been absolutely ah-mazing. You have donated. You have supported us. You have walked. You have prayed.
And this year when I've honestly been lacking myself. With everything else going on, I haven't been doing fundraisers. I haven't been doing benefit nights. I haven't been flooding your newsfeed for two months with pleas. And you have absolutely blown me away with your generosity. Every time and I mean every time someone donates, I cry because we are so truly, truly blessed by our friends and family.
So please keep it up. When I say we're close, I mean like almost reach out and touch it close.
And know that this isn't just about Gracie. There are so many other sweet cfers with different gene types, and the research is changing lives. The research is saving lives. You guys are saving lives and changing THE talk for so many of us.
Thank you.
To donate go to
http://www.cff.org/Great_Strides/dsp_DonationPage.cfm?walkid=8672&idUser=104366
