Saturday, March 31, 2012

Oh it's a vent

So this post is mostly for me. Just gotta get it out there.
So here goes.
I'm feeling pretty exhausted by the whole CF raising money thing. We've been doing it for eight years now and for some reason this year is just getting to me.
And for the life of me I can't pinpoint as to why it's this year that's bugging me so much. We're getting so close, I mean stupid close to a cure. I should be more motivated than ever. I should be on fire this year...and yet I'm not.
I have these ah-mazing supportive friends, and no lie people have absolutely astounded me with their generosity this year. I've teared up with every donation. So much love from my friends.
Maybe it was the video this year. I knew for a good month ahead of time exactly what I wanted to do. And I came up with every excuse, I mean every excuse I could think of to put it off. I can't even bring myself to watch the dang thing again. It makes me nauseous to post it on fb. And you know how I love to post everything on fb.
Maybe I'm just tired of my daughter having to deal with all this. She's doing so ah-mazing, but I know with this disease it's all just holding off the inevitable. And to see the finish line off in the distance...
If we can just keep her healthy until the cure...
She could have a normal life. That's a lot of pressure.
What if she gets sick? What if there's more scarring? What then?
I'm so tired of asking people for money. Knowing that people choose to not watch the video or that they watch it and the don't help.
I know there are countless reasons, some so legitimate. It still stings. It's still discouraging.
She knows we're getting close. Yesterday she sat with me and quizzed me up one side and down the other about it. I'm trying to give her the information, give her hope and yet still protect her from the what if's.
What if this drug doesn't get thru? What if we're back at square one with no end in sight?
For the last seven years I've been praying for this. I thought I gave this to God a long time ago. And now, right here at the end I'm desperately trying to take it back.
As if my worrying can force this drug thru any faster.
Oh Lord, I need your peace. I need your reassurance that you really do have this. I need you to help me pry my fingers off this disease that I have no control over. I need to trust you fully with my precious baby girl. Oh Lord, help me.

Wednesday, March 28, 2012

So you've been asked to join my team :)

The 411 on walking.
So here's the deal on the Great Strides Walk.
First of all, thank you guys for all your support. You guys just rock.
So I keep asking for people to join my team. I know what your thinking. "Um, what exactly does that mean?"
Good question. (And not just cuz I wrote it ;)
You click on the link to my page. You scroll down and see a button that says 'Join my team.'
Click that.
There will be a screen where it has you register. Fill in your info.
Now what's the benefit to joining my team over donating.
Another excellent question ;)
Well you will have your own donation page that you can send out and that means not only can you donate, but you can help raise more funds from your contacts.
Your Aunt Tilly (I couldn't come up with another generic name) will be much more likely to donate on your page than mine. Plus you can do most of the work just emailing your page or posting a link to it on facebook from your own home in your pjs.
People can donate directly on your page. You don't have to keep up with pledge sheets or collect money.
If you'd like to do more, there's also links from your CF Great Strides page with ideas of how to raise more money. Things like doing jeans day at work or wear a hat day. (Personally I do wear sweatpants day at my house as least once a week ;)
And on the day of the walk you get to come to MediPark, have some free breakfast and walk. I have to say I also love getting to see all the other teams and their cfers. Its such a blessing to get to see all the kids that you're helping. Just watch out for the duck 'droppings' at the park.
Sound like too much work? No prob. I'll be happy to come to your house to set up your page for you.
So if you'd like to come become a team Hope member, what's stopping you?
Get started at http://www.cff.org/Great_Strides/dsp_DonationPage.cfm?walkid=7755&idUser=104366